We just got the results of stevens ph probe. He has agressive acid reflux. He is being put back on prevacid until we can talk to the surgeon and see what they want to do. They have not figured out why he makes the funny noise. they think it is the reflex hiting his vocal cords. The doctor said that if he doesnt have surgery now he will probly have one not to long from now to fix his reflex. Hopefully we are getting closer to making steven well. Thank you for all your prayers. we keep everyone posted on what happens next.

So as everyone knows Steven is having health problems STILL sadly. He was in the hospital again on the 19Th for a PH probe Which means they stick a tube down his nose in to his esophagus and monitor his pH levels and than they will decide what they will do from there. If they can prove it is a case of very aggressive overactive acid reflux they will do a surgery and open him up and shut off his acid pumps to help. We will not know what there decision is for another week and a half to two weeks. Steven was so busy at the hospital that i wasn't able to get any pictures of him being Steven, but i do not think the nurses nor the IT team will ever forget him for reformation the computers. LOL

Steven got his first hair cut a couple days after he got home from the hospital. The glue that they had to use to keep the probes on his head was so bad to get out and after washing his hair about half a dozen times we decided it was about time to give him a hair cut. Steven loved the stylist and was quite and very patient and sat still through out the whole thing which shocked me. After all was done he got a cookie cutter, a balloon, and a sucker




.

I Am really behind. For anyone who doesn't know Steven has been having odd health problems. Since February Steven has had a odd strider that has been debilitating for him. we have been to countless doctors and many hospital, two EEG stays to trying to find out what is wrong with him. On May 25Th he had a bronchioscope and a super gloteoplasty(spelling?). Which i means they stuck a tube down his throat and looked at his lungs, trachea, bronchi and they took a milometer of tissue from his epiglottis. We thought that fixed it but sadly it has gotten worse. They thought he was having seizures so we did a 3 day EEG( they stick probes on his head and and watch his brain waves). That dint show anything. so we went back to the GI doctor and he has decided that we will do a PH probe on the 19Th of this month(Which means they will stick a probe down his nose in to his stomach and they will monitor his acid leave. If his acid is as bad as they think it is they will another surgery that will in essence will make the opening in the top of his stomach smaller so that not as much acid will get out.